Monday, October 11, 2010

Our Souvenir from Children's Hospital

So after Levi had gotten through the ICP Monitoring and was diagnosed with Slit Ventricle Syndrome, his current neurosurgeon's partner unscrewed the ICP bolt and then pulled it out of his head while he was fully awake.  Let me tell you how heart breaking it was to hold him down with my mom in order to keep him still.  It was painful for him, and for me. In the midst of his crying and trying to calm him down and reassure him that it was over the neurosurgeon handed me the ICP bolt and said, "Here you go, a souvenir."

Well I did keep it and thought for sure Levi might want to see it one day, or at least our family, so they could know exactly what the procedure was.  Whenever I pass by the bolt I can't help but thinking how crazy it was for him to have this thing screwed into his head and then just unscrewed and pulled out like it was no big deal.  We are so glad that ordeal is over with.  But we aren't looking forward to what the diagnosis might bring our way next.

At least he's still acting like himself  =).  I love this boy more than anyone could imagine.


Sue@Uniquely Chic said...

Your poor little guy. That must have been so difficult to go through, for all of you. I will keep Levi in my thoughts. Peace to you...Sue