We spent this week living at the hospital. It was not fun.
Last week Levi had a pretty bad time. He threw up only once but was getting headaches everyday, and was extremely tired and cranky. On Sunday it got even worse, he was in a lot of pain from his head hurting and the back of his neck. He wouldn't even lift his head up to eat. So Monday morning I got him in to see his Neurosurgeon at the Children's Hospital. We waited almost 3 hours before talking to her, then she came in like the whirlwind she is and decided to tap his shunt to get an idea of his pressure. After the tap she said to call her tomorrow at 8 because she wanted to go ahead and get him "in." In meaning she wanted to do surgery on him. Here we go again is what I thought...
Monday night was a hard night because Levi had taken a nap from 4:30 to 7:30pm and then refused to go to sleep that night until 7:30am on Tuesday! I was only able to get about 30 minutes of sleep before his Neurosurgeon's office called and wanted him to come in for the surgery right away. UGH. I rushed around to get ready, pack some stuff up, and then got the kids up to leave for the hospital.
We had about a 3 hour wait before they actually took him for surgery, it felt like forever. Then I handed him to the nurse while trying to hold back tears.
His surgery was to replace the ventricular catheter in his shunt, and to add a small lumen tubing to help slow down his shunt's drainage and correct the pressure levels in his head. The surgery went well, and after getting a CT we went to his room. The hospital had visitor restrictions due to flu and RSV season, so no one under the age of 12 was allowed in patients' rooms. I was worried about Rian, not being able to stay, but luckily the nurses were sympathetic to me and my breastfed baby and agreed to let her stay in the room with us. As long as we didn't take her out of the room while we were there.
Wednesday and Thursday were hard days for Levi, he got two really bad headaches and threw up within minutes. After getting sick he would want to sleep for hours and hours. Thursday afternoon the doctor adjusted the valve on his shunt and told us she thought that would help him. By Friday, or I guess today I should say, he was feeling much better and was able to come home around 8pm. He woke up at 4am this morning and stayed up until 1:30pm. Since then he's been sleeping. I know it's a long shot but I am hoping he stays asleep and allows us to get some rest.
Justin and I are exhausted, sleep deprived zombies that need our rest. Such a long week, we're so happy to be home.